Non profit foundation.
Created in January 2022.
Objective : Helping medical research on Usher Syndrome.
WHAT IS USHER SYNDROME ?
Rare genetic disease that affects both hearing and vision. It causes deafness or hearing loss and an eye disease called Retinitis Pigmentosa (RP) which cause a :
Diminution of night vision
Lost of daytime vision
This is the most frequent cause of double oculo-auditory impairment.
WHO WE ARE &
WHAT WE DO.
We are first of all a foundation created with the aim of raising awareness & helping medical research related to Usher Syndrome.
We were born after having proposed a unique project to the emblematic brand Giorgio Armani.
This project was created to give Benjamin the opportunity to explore as much as he can before his incurable retinitis pigmentosa takes his vision away.
Osteopath & International model
Founder & CEO of Horizon Usher Foundation
Suffering of Usher Syndrome
With the aim to help him finding the cure of his disease, we have decided to set up a team of five friends to cross the Atlantic Ocean by sail which was one challenge that Benjamin's wanted to accomplish in his life.